AutomedicationFrancoV1, Main, Exploration, bibRecord, 000C04

Impact of caring for patients with severe and complex disabilities on health care workers' quality of life: determinants and specificities.

Identifieur interne : 000C04 ( Main/Exploration ); précédent : 000C03; suivant : 000C05

Impact of caring for patients with severe and complex disabilities on health care workers' quality of life: determinants and specificities.

Auteurs : Marie-Christine Rousseau [France] ; Karine Baumstarck [France] ; Tanguy Leroy [France] ; Cherazad Khaldi-Cherif [France] ; Catherine Brisse [France] ; Laurent Boyer [France] ; Noémie Resseguier [France] ; Claire Morando [France] ; Thierry Billette De Villemeur [France] ; Pascal Auquier [France]

Source :

Developmental medicine and child neurology [ 1469-8749 ] ; 2017.

RBID : pubmed:28432687

Descripteurs français

English descriptors

KwdEn :
- Adaptation, Psychological (MeSH), Adult (MeSH), Age Factors (MeSH), Burnout, Professional (MeSH), Caregivers (psychology), Cohort Studies (MeSH), Cross-Sectional Studies (MeSH), Disabled Persons (MeSH), Female (MeSH), France (MeSH), Health Personnel (psychology), Humans (MeSH), Male (MeSH), Middle Aged (MeSH), Multivariate Analysis (MeSH), Quality of Life (MeSH), Self Report (MeSH), Socioeconomic Factors (MeSH), Young Adult (MeSH).
MESH :
- psychology : Caregivers, Health Personnel.
- Adaptation, Psychological, Adult, Age Factors, Burnout, Professional, Cohort Studies, Cross-Sectional Studies, Disabled Persons, Female, France, Humans, Male, Middle Aged, Multivariate Analysis, Quality of Life, Self Report, Socioeconomic Factors, Young Adult.

Abstract

AIM

Individuals with severe and complex disabilities, defined by a combination of profound intellectual impairment and serious motor deficit resulting in extreme dependence, often remain in hospital or at residential facilities. The aim of this study was to identify the determinants of quality of life (QoL) of 238 health care workers (HCWs) caring for individuals with severe and complex disabilities.

METHOD

We conducted a cross-sectional study. The recruitment of the HCWs was performed in five French centres specializing in patients with severe and complex disabilities. The selection criteria were age above 18 years, being an institutional referent HCW (a resource person coordinating various issues for or about the patient), and agreeing to participate. Sociodemographic, health, professional variables, and psycho-behavioural (QoL, burn-out, and coping strategies) data were collected.

RESULTS

Of the 362 eligible HCWs, 65.7% returned the questionnaires. The scores of the physical and social dimensions of QoL were significantly lower, and the score of the psychological dimension significantly higher, than those of a comparison group. The main factors modulating QoL were age, financial difficulties, nature of coping strategy, and burn-out.

INTERPRETATION

This research provides preliminary evidence that caring for patients with severe and complex disabilities affects the QoL of HCWs. These results support the need for optimization of the work environments for HCWs.

DOI: 10.1111/dmcn.13428
PubMed: 28432687

Affiliations:

Links toward previous steps (curation, corpus...)

to stream Main, to step Corpus: 000B74
to stream Main, to step Curation: 000B74

Le document en format XML

<record><TEI><teiHeader><fileDesc><titleStmt><title xml:lang="en">Impact of caring for patients with severe and complex disabilities on health care workers' quality of life: determinants and specificities.</title>
<author><name sortKey="Rousseau, Marie Christine" sort="Rousseau, Marie Christine" uniqKey="Rousseau M" first="Marie-Christine" last="Rousseau">Marie-Christine Rousseau</name>
<affiliation wicri:level="1"><nlm:affiliation>Fédération des Hôpitaux de Polyhandicap et Multihandicap Hôpital San Salvadour, Assistance Publique Hôpitaux de Paris, Hyères, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Fédération des Hôpitaux de Polyhandicap et Multihandicap Hôpital San Salvadour, Assistance Publique Hôpitaux de Paris, Hyères</wicri:regionArea>
<wicri:noRegion>Hyères</wicri:noRegion>
<wicri:noRegion>Hyères</wicri:noRegion>
</affiliation>
<affiliation wicri:level="4"><nlm:affiliation>Self-Perceived Health Assessment Research Unit, School of Medicine, Aix Marseille Université, Marseille, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Self-Perceived Health Assessment Research Unit, School of Medicine, Aix Marseille Université, Marseille</wicri:regionArea>
<placeName><region type="region">Provence-Alpes-Côte d'Azur</region>
<region type="old region">Provence-Alpes-Côte d'Azur</region>
<settlement type="city">Marseille</settlement>
</placeName>
<orgName type="university">Université d'Aix-Marseille</orgName>
</affiliation>
</author>
<author><name sortKey="Baumstarck, Karine" sort="Baumstarck, Karine" uniqKey="Baumstarck K" first="Karine" last="Baumstarck">Karine Baumstarck</name>
<affiliation wicri:level="4"><nlm:affiliation>Self-Perceived Health Assessment Research Unit, School of Medicine, Aix Marseille Université, Marseille, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Self-Perceived Health Assessment Research Unit, School of Medicine, Aix Marseille Université, Marseille</wicri:regionArea>
<placeName><region type="region">Provence-Alpes-Côte d'Azur</region>
<region type="old region">Provence-Alpes-Côte d'Azur</region>
<settlement type="city">Marseille</settlement>
</placeName>
<orgName type="university">Université d'Aix-Marseille</orgName>
</affiliation>
</author>
<author><name sortKey="Leroy, Tanguy" sort="Leroy, Tanguy" uniqKey="Leroy T" first="Tanguy" last="Leroy">Tanguy Leroy</name>
<affiliation wicri:level="3"><nlm:affiliation>Groupe de Recherche de Psychologie Sociale (GRePS), Université Lyon 2, Lyon, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Groupe de Recherche de Psychologie Sociale (GRePS), Université Lyon 2, Lyon</wicri:regionArea>
<placeName><region type="region">Auvergne-Rhône-Alpes</region>
<region type="old region">Rhône-Alpes</region>
<settlement type="city">Lyon</settlement>
</placeName>
</affiliation>
</author>
<author><name sortKey="Khaldi Cherif, Cherazad" sort="Khaldi Cherif, Cherazad" uniqKey="Khaldi Cherif C" first="Cherazad" last="Khaldi-Cherif">Cherazad Khaldi-Cherif</name>
<affiliation wicri:level="1"><nlm:affiliation>Union Générale Caisse Assurance Maladie (UGECAM), Ile de France, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Union Générale Caisse Assurance Maladie (UGECAM), Ile de France</wicri:regionArea>
<wicri:noRegion>Ile de France</wicri:noRegion>
<wicri:noRegion>Ile de France</wicri:noRegion>
</affiliation>
</author>
<author><name sortKey="Brisse, Catherine" sort="Brisse, Catherine" uniqKey="Brisse C" first="Catherine" last="Brisse">Catherine Brisse</name>
<affiliation wicri:level="3"><nlm:affiliation>Comité d'Études, d'Éducation et de Soins Auprès des Personnes Polyhandicapées, Paris, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Comité d'Études, d'Éducation et de Soins Auprès des Personnes Polyhandicapées, Paris</wicri:regionArea>
<placeName><region type="region">Île-de-France</region>
<region type="old region">Île-de-France</region>
<settlement type="city">Paris</settlement>
</placeName>
</affiliation>
</author>
<author><name sortKey="Boyer, Laurent" sort="Boyer, Laurent" uniqKey="Boyer L" first="Laurent" last="Boyer">Laurent Boyer</name>
<affiliation wicri:level="4"><nlm:affiliation>Self-Perceived Health Assessment Research Unit, School of Medicine, Aix Marseille Université, Marseille, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Self-Perceived Health Assessment Research Unit, School of Medicine, Aix Marseille Université, Marseille</wicri:regionArea>
<placeName><region type="region">Provence-Alpes-Côte d'Azur</region>
<region type="old region">Provence-Alpes-Côte d'Azur</region>
<settlement type="city">Marseille</settlement>
</placeName>
<orgName type="university">Université d'Aix-Marseille</orgName>
</affiliation>
</author>
<author><name sortKey="Resseguier, Noemie" sort="Resseguier, Noemie" uniqKey="Resseguier N" first="Noémie" last="Resseguier">Noémie Resseguier</name>
<affiliation wicri:level="4"><nlm:affiliation>Self-Perceived Health Assessment Research Unit, School of Medicine, Aix Marseille Université, Marseille, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Self-Perceived Health Assessment Research Unit, School of Medicine, Aix Marseille Université, Marseille</wicri:regionArea>
<placeName><region type="region">Provence-Alpes-Côte d'Azur</region>
<region type="old region">Provence-Alpes-Côte d'Azur</region>
<settlement type="city">Marseille</settlement>
</placeName>
<orgName type="university">Université d'Aix-Marseille</orgName>
</affiliation>
</author>
<author><name sortKey="Morando, Claire" sort="Morando, Claire" uniqKey="Morando C" first="Claire" last="Morando">Claire Morando</name>
<affiliation wicri:level="4"><nlm:affiliation>Self-Perceived Health Assessment Research Unit, School of Medicine, Aix Marseille Université, Marseille, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Self-Perceived Health Assessment Research Unit, School of Medicine, Aix Marseille Université, Marseille</wicri:regionArea>
<placeName><region type="region">Provence-Alpes-Côte d'Azur</region>
<region type="old region">Provence-Alpes-Côte d'Azur</region>
<settlement type="city">Marseille</settlement>
</placeName>
<orgName type="university">Université d'Aix-Marseille</orgName>
</affiliation>
</author>
<author><name sortKey="Billette De Villemeur, Thierry" sort="Billette De Villemeur, Thierry" uniqKey="Billette De Villemeur T" first="Thierry" last="Billette De Villemeur">Thierry Billette De Villemeur</name>
<affiliation wicri:level="3"><nlm:affiliation>Service de Neuropédiatrie et Polyhandicap Pédiatrique, Hôpital Trousseau, Assistance Publique Hôpitaux de Paris, Paris, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Service de Neuropédiatrie et Polyhandicap Pédiatrique, Hôpital Trousseau, Assistance Publique Hôpitaux de Paris, Paris</wicri:regionArea>
<placeName><region type="region">Île-de-France</region>
<region type="old region">Île-de-France</region>
<settlement type="city">Paris</settlement>
</placeName>
</affiliation>
</author>
<author><name sortKey="Auquier, Pascal" sort="Auquier, Pascal" uniqKey="Auquier P" first="Pascal" last="Auquier">Pascal Auquier</name>
<affiliation wicri:level="4"><nlm:affiliation>Self-Perceived Health Assessment Research Unit, School of Medicine, Aix Marseille Université, Marseille, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Self-Perceived Health Assessment Research Unit, School of Medicine, Aix Marseille Université, Marseille</wicri:regionArea>
<placeName><region type="region">Provence-Alpes-Côte d'Azur</region>
<region type="old region">Provence-Alpes-Côte d'Azur</region>
<settlement type="city">Marseille</settlement>
</placeName>
<orgName type="university">Université d'Aix-Marseille</orgName>
</affiliation>
</author>
</titleStmt>
<publicationStmt><idno type="wicri:source">PubMed</idno>
<date when="2017">2017</date>
<idno type="RBID">pubmed:28432687</idno>
<idno type="pmid">28432687</idno>
<idno type="doi">10.1111/dmcn.13428</idno>
<idno type="wicri:Area/Main/Corpus">000B74</idno>
<idno type="wicri:explorRef" wicri:stream="Main" wicri:step="Corpus" wicri:corpus="PubMed">000B74</idno>
<idno type="wicri:Area/Main/Curation">000B74</idno>
<idno type="wicri:explorRef" wicri:stream="Main" wicri:step="Curation">000B74</idno>
<idno type="wicri:Area/Main/Exploration">000B74</idno>
</publicationStmt>
<sourceDesc><biblStruct><analytic><title xml:lang="en">Impact of caring for patients with severe and complex disabilities on health care workers' quality of life: determinants and specificities.</title>
<author><name sortKey="Rousseau, Marie Christine" sort="Rousseau, Marie Christine" uniqKey="Rousseau M" first="Marie-Christine" last="Rousseau">Marie-Christine Rousseau</name>
<affiliation wicri:level="1"><nlm:affiliation>Fédération des Hôpitaux de Polyhandicap et Multihandicap Hôpital San Salvadour, Assistance Publique Hôpitaux de Paris, Hyères, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Fédération des Hôpitaux de Polyhandicap et Multihandicap Hôpital San Salvadour, Assistance Publique Hôpitaux de Paris, Hyères</wicri:regionArea>
<wicri:noRegion>Hyères</wicri:noRegion>
<wicri:noRegion>Hyères</wicri:noRegion>
</affiliation>
<affiliation wicri:level="4"><nlm:affiliation>Self-Perceived Health Assessment Research Unit, School of Medicine, Aix Marseille Université, Marseille, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Self-Perceived Health Assessment Research Unit, School of Medicine, Aix Marseille Université, Marseille</wicri:regionArea>
<placeName><region type="region">Provence-Alpes-Côte d'Azur</region>
<region type="old region">Provence-Alpes-Côte d'Azur</region>
<settlement type="city">Marseille</settlement>
</placeName>
<orgName type="university">Université d'Aix-Marseille</orgName>
</affiliation>
</author>
<author><name sortKey="Baumstarck, Karine" sort="Baumstarck, Karine" uniqKey="Baumstarck K" first="Karine" last="Baumstarck">Karine Baumstarck</name>
<affiliation wicri:level="4"><nlm:affiliation>Self-Perceived Health Assessment Research Unit, School of Medicine, Aix Marseille Université, Marseille, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Self-Perceived Health Assessment Research Unit, School of Medicine, Aix Marseille Université, Marseille</wicri:regionArea>
<placeName><region type="region">Provence-Alpes-Côte d'Azur</region>
<region type="old region">Provence-Alpes-Côte d'Azur</region>
<settlement type="city">Marseille</settlement>
</placeName>
<orgName type="university">Université d'Aix-Marseille</orgName>
</affiliation>
</author>
<author><name sortKey="Leroy, Tanguy" sort="Leroy, Tanguy" uniqKey="Leroy T" first="Tanguy" last="Leroy">Tanguy Leroy</name>
<affiliation wicri:level="3"><nlm:affiliation>Groupe de Recherche de Psychologie Sociale (GRePS), Université Lyon 2, Lyon, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Groupe de Recherche de Psychologie Sociale (GRePS), Université Lyon 2, Lyon</wicri:regionArea>
<placeName><region type="region">Auvergne-Rhône-Alpes</region>
<region type="old region">Rhône-Alpes</region>
<settlement type="city">Lyon</settlement>
</placeName>
</affiliation>
</author>
<author><name sortKey="Khaldi Cherif, Cherazad" sort="Khaldi Cherif, Cherazad" uniqKey="Khaldi Cherif C" first="Cherazad" last="Khaldi-Cherif">Cherazad Khaldi-Cherif</name>
<affiliation wicri:level="1"><nlm:affiliation>Union Générale Caisse Assurance Maladie (UGECAM), Ile de France, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Union Générale Caisse Assurance Maladie (UGECAM), Ile de France</wicri:regionArea>
<wicri:noRegion>Ile de France</wicri:noRegion>
<wicri:noRegion>Ile de France</wicri:noRegion>
</affiliation>
</author>
<author><name sortKey="Brisse, Catherine" sort="Brisse, Catherine" uniqKey="Brisse C" first="Catherine" last="Brisse">Catherine Brisse</name>
<affiliation wicri:level="3"><nlm:affiliation>Comité d'Études, d'Éducation et de Soins Auprès des Personnes Polyhandicapées, Paris, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Comité d'Études, d'Éducation et de Soins Auprès des Personnes Polyhandicapées, Paris</wicri:regionArea>
<placeName><region type="region">Île-de-France</region>
<region type="old region">Île-de-France</region>
<settlement type="city">Paris</settlement>
</placeName>
</affiliation>
</author>
<author><name sortKey="Boyer, Laurent" sort="Boyer, Laurent" uniqKey="Boyer L" first="Laurent" last="Boyer">Laurent Boyer</name>
<affiliation wicri:level="4"><nlm:affiliation>Self-Perceived Health Assessment Research Unit, School of Medicine, Aix Marseille Université, Marseille, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Self-Perceived Health Assessment Research Unit, School of Medicine, Aix Marseille Université, Marseille</wicri:regionArea>
<placeName><region type="region">Provence-Alpes-Côte d'Azur</region>
<region type="old region">Provence-Alpes-Côte d'Azur</region>
<settlement type="city">Marseille</settlement>
</placeName>
<orgName type="university">Université d'Aix-Marseille</orgName>
</affiliation>
</author>
<author><name sortKey="Resseguier, Noemie" sort="Resseguier, Noemie" uniqKey="Resseguier N" first="Noémie" last="Resseguier">Noémie Resseguier</name>
<affiliation wicri:level="4"><nlm:affiliation>Self-Perceived Health Assessment Research Unit, School of Medicine, Aix Marseille Université, Marseille, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Self-Perceived Health Assessment Research Unit, School of Medicine, Aix Marseille Université, Marseille</wicri:regionArea>
<placeName><region type="region">Provence-Alpes-Côte d'Azur</region>
<region type="old region">Provence-Alpes-Côte d'Azur</region>
<settlement type="city">Marseille</settlement>
</placeName>
<orgName type="university">Université d'Aix-Marseille</orgName>
</affiliation>
</author>
<author><name sortKey="Morando, Claire" sort="Morando, Claire" uniqKey="Morando C" first="Claire" last="Morando">Claire Morando</name>
<affiliation wicri:level="4"><nlm:affiliation>Self-Perceived Health Assessment Research Unit, School of Medicine, Aix Marseille Université, Marseille, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Self-Perceived Health Assessment Research Unit, School of Medicine, Aix Marseille Université, Marseille</wicri:regionArea>
<placeName><region type="region">Provence-Alpes-Côte d'Azur</region>
<region type="old region">Provence-Alpes-Côte d'Azur</region>
<settlement type="city">Marseille</settlement>
</placeName>
<orgName type="university">Université d'Aix-Marseille</orgName>
</affiliation>
</author>
<author><name sortKey="Billette De Villemeur, Thierry" sort="Billette De Villemeur, Thierry" uniqKey="Billette De Villemeur T" first="Thierry" last="Billette De Villemeur">Thierry Billette De Villemeur</name>
<affiliation wicri:level="3"><nlm:affiliation>Service de Neuropédiatrie et Polyhandicap Pédiatrique, Hôpital Trousseau, Assistance Publique Hôpitaux de Paris, Paris, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Service de Neuropédiatrie et Polyhandicap Pédiatrique, Hôpital Trousseau, Assistance Publique Hôpitaux de Paris, Paris</wicri:regionArea>
<placeName><region type="region">Île-de-France</region>
<region type="old region">Île-de-France</region>
<settlement type="city">Paris</settlement>
</placeName>
</affiliation>
</author>
<author><name sortKey="Auquier, Pascal" sort="Auquier, Pascal" uniqKey="Auquier P" first="Pascal" last="Auquier">Pascal Auquier</name>
<affiliation wicri:level="4"><nlm:affiliation>Self-Perceived Health Assessment Research Unit, School of Medicine, Aix Marseille Université, Marseille, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Self-Perceived Health Assessment Research Unit, School of Medicine, Aix Marseille Université, Marseille</wicri:regionArea>
<placeName><region type="region">Provence-Alpes-Côte d'Azur</region>
<region type="old region">Provence-Alpes-Côte d'Azur</region>
<settlement type="city">Marseille</settlement>
</placeName>
<orgName type="university">Université d'Aix-Marseille</orgName>
</affiliation>
</author>
</analytic>
<series><title level="j">Developmental medicine and child neurology</title>
<idno type="eISSN">1469-8749</idno>
<imprint><date when="2017" type="published">2017</date>
</imprint>
</series>
</biblStruct>
</sourceDesc>
</fileDesc>
<profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Adaptation, Psychological (MeSH)</term>
<term>Adult (MeSH)</term>
<term>Age Factors (MeSH)</term>
<term>Burnout, Professional (MeSH)</term>
<term>Caregivers (psychology)</term>
<term>Cohort Studies (MeSH)</term>
<term>Cross-Sectional Studies (MeSH)</term>
<term>Disabled Persons (MeSH)</term>
<term>Female (MeSH)</term>
<term>France (MeSH)</term>
<term>Health Personnel (psychology)</term>
<term>Humans (MeSH)</term>
<term>Male (MeSH)</term>
<term>Middle Aged (MeSH)</term>
<term>Multivariate Analysis (MeSH)</term>
<term>Quality of Life (MeSH)</term>
<term>Self Report (MeSH)</term>
<term>Socioeconomic Factors (MeSH)</term>
<term>Young Adult (MeSH)</term>
</keywords>
<keywords scheme="KwdFr" xml:lang="fr"><term>Adaptation psychologique (MeSH)</term>
<term>Adulte (MeSH)</term>
<term>Adulte d'âge moyen (MeSH)</term>
<term>Aidants (psychologie)</term>
<term>Analyse multifactorielle (MeSH)</term>
<term>Autorapport (MeSH)</term>
<term>Facteurs socioéconomiques (MeSH)</term>
<term>Facteurs âges (MeSH)</term>
<term>Femelle (MeSH)</term>
<term>France (MeSH)</term>
<term>Humains (MeSH)</term>
<term>Jeune adulte (MeSH)</term>
<term>Mâle (MeSH)</term>
<term>Personnel de santé (psychologie)</term>
<term>Personnes handicapées (MeSH)</term>
<term>Qualité de vie (MeSH)</term>
<term>Épuisement professionnel (MeSH)</term>
<term>Études de cohortes (MeSH)</term>
<term>Études transversales (MeSH)</term>
</keywords>
<keywords scheme="MESH" qualifier="psychologie" xml:lang="fr"><term>Aidants</term>
<term>Personnel de santé</term>
</keywords>
<keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Caregivers</term>
<term>Health Personnel</term>
</keywords>
<keywords scheme="MESH" xml:lang="en"><term>Adaptation, Psychological</term>
<term>Adult</term>
<term>Age Factors</term>
<term>Burnout, Professional</term>
<term>Cohort Studies</term>
<term>Cross-Sectional Studies</term>
<term>Disabled Persons</term>
<term>Female</term>
<term>France</term>
<term>Humans</term>
<term>Male</term>
<term>Middle Aged</term>
<term>Multivariate Analysis</term>
<term>Quality of Life</term>
<term>Self Report</term>
<term>Socioeconomic Factors</term>
<term>Young Adult</term>
</keywords>
<keywords scheme="MESH" xml:lang="fr"><term>Adaptation psychologique</term>
<term>Adulte</term>
<term>Adulte d'âge moyen</term>
<term>Analyse multifactorielle</term>
<term>Autorapport</term>
<term>Facteurs socioéconomiques</term>
<term>Facteurs âges</term>
<term>Femelle</term>
<term>France</term>
<term>Humains</term>
<term>Jeune adulte</term>
<term>Mâle</term>
<term>Personnes handicapées</term>
<term>Qualité de vie</term>
<term>Épuisement professionnel</term>
<term>Études de cohortes</term>
<term>Études transversales</term>
</keywords>
</textClass>
</profileDesc>
</teiHeader>
<front><div type="abstract" xml:lang="en"><p><b>AIM</b>
</p>
<p>Individuals with severe and complex disabilities, defined by a combination of profound intellectual impairment and serious motor deficit resulting in extreme dependence, often remain in hospital or at residential facilities. The aim of this study was to identify the determinants of quality of life (QoL) of 238 health care workers (HCWs) caring for individuals with severe and complex disabilities.</p>
</div>
<div type="abstract" xml:lang="en"><p><b>METHOD</b>
</p>
<p>We conducted a cross-sectional study. The recruitment of the HCWs was performed in five French centres specializing in patients with severe and complex disabilities. The selection criteria were age above 18 years, being an institutional referent HCW (a resource person coordinating various issues for or about the patient), and agreeing to participate. Sociodemographic, health, professional variables, and psycho-behavioural (QoL, burn-out, and coping strategies) data were collected.</p>
</div>
<div type="abstract" xml:lang="en"><p><b>RESULTS</b>
</p>
<p>Of the 362 eligible HCWs, 65.7% returned the questionnaires. The scores of the physical and social dimensions of QoL were significantly lower, and the score of the psychological dimension significantly higher, than those of a comparison group. The main factors modulating QoL were age, financial difficulties, nature of coping strategy, and burn-out.</p>
</div>
<div type="abstract" xml:lang="en"><p><b>INTERPRETATION</b>
</p>
<p>This research provides preliminary evidence that caring for patients with severe and complex disabilities affects the QoL of HCWs. These results support the need for optimization of the work environments for HCWs.</p>
</div>
</front>
</TEI>
<pubmed><MedlineCitation Status="MEDLINE" Owner="NLM"><PMID Version="1">28432687</PMID>
<DateCompleted><Year>2017</Year>
<Month>06</Month>
<Day>19</Day>
</DateCompleted>
<DateRevised><Year>2017</Year>
<Month>12</Month>
<Day>09</Day>
</DateRevised>
<Article PubModel="Print-Electronic"><Journal><ISSN IssnType="Electronic">1469-8749</ISSN>
<JournalIssue CitedMedium="Internet"><Volume>59</Volume>
<Issue>7</Issue>
<PubDate><Year>2017</Year>
<Month>07</Month>
</PubDate>
</JournalIssue>
<Title>Developmental medicine and child neurology</Title>
<ISOAbbreviation>Dev Med Child Neurol</ISOAbbreviation>
</Journal>
<ArticleTitle>Impact of caring for patients with severe and complex disabilities on health care workers' quality of life: determinants and specificities.</ArticleTitle>
<Pagination><MedlinePgn>732-737</MedlinePgn>
</Pagination>
<ELocationID EIdType="doi" ValidYN="Y">10.1111/dmcn.13428</ELocationID>
<Abstract><AbstractText Label="AIM">Individuals with severe and complex disabilities, defined by a combination of profound intellectual impairment and serious motor deficit resulting in extreme dependence, often remain in hospital or at residential facilities. The aim of this study was to identify the determinants of quality of life (QoL) of 238 health care workers (HCWs) caring for individuals with severe and complex disabilities.</AbstractText>
<AbstractText Label="METHOD">We conducted a cross-sectional study. The recruitment of the HCWs was performed in five French centres specializing in patients with severe and complex disabilities. The selection criteria were age above 18 years, being an institutional referent HCW (a resource person coordinating various issues for or about the patient), and agreeing to participate. Sociodemographic, health, professional variables, and psycho-behavioural (QoL, burn-out, and coping strategies) data were collected.</AbstractText>
<AbstractText Label="RESULTS">Of the 362 eligible HCWs, 65.7% returned the questionnaires. The scores of the physical and social dimensions of QoL were significantly lower, and the score of the psychological dimension significantly higher, than those of a comparison group. The main factors modulating QoL were age, financial difficulties, nature of coping strategy, and burn-out.</AbstractText>
<AbstractText Label="INTERPRETATION">This research provides preliminary evidence that caring for patients with severe and complex disabilities affects the QoL of HCWs. These results support the need for optimization of the work environments for HCWs.</AbstractText>
<CopyrightInformation>© 2017 Mac Keith Press.</CopyrightInformation>
</Abstract>
<AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Rousseau</LastName>
<ForeName>Marie-Christine</ForeName>
<Initials>MC</Initials>
<AffiliationInfo><Affiliation>Fédération des Hôpitaux de Polyhandicap et Multihandicap Hôpital San Salvadour, Assistance Publique Hôpitaux de Paris, Hyères, France.</Affiliation>
</AffiliationInfo>
<AffiliationInfo><Affiliation>Self-Perceived Health Assessment Research Unit, School of Medicine, Aix Marseille Université, Marseille, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Baumstarck</LastName>
<ForeName>Karine</ForeName>
<Initials>K</Initials>
<Identifier Source="ORCID">0000-0003-3602-6766</Identifier>
<AffiliationInfo><Affiliation>Self-Perceived Health Assessment Research Unit, School of Medicine, Aix Marseille Université, Marseille, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Leroy</LastName>
<ForeName>Tanguy</ForeName>
<Initials>T</Initials>
<AffiliationInfo><Affiliation>Groupe de Recherche de Psychologie Sociale (GRePS), Université Lyon 2, Lyon, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Khaldi-Cherif</LastName>
<ForeName>Cherazad</ForeName>
<Initials>C</Initials>
<AffiliationInfo><Affiliation>Union Générale Caisse Assurance Maladie (UGECAM), Ile de France, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Brisse</LastName>
<ForeName>Catherine</ForeName>
<Initials>C</Initials>
<AffiliationInfo><Affiliation>Comité d'Études, d'Éducation et de Soins Auprès des Personnes Polyhandicapées, Paris, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Boyer</LastName>
<ForeName>Laurent</ForeName>
<Initials>L</Initials>
<AffiliationInfo><Affiliation>Self-Perceived Health Assessment Research Unit, School of Medicine, Aix Marseille Université, Marseille, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Resseguier</LastName>
<ForeName>Noémie</ForeName>
<Initials>N</Initials>
<AffiliationInfo><Affiliation>Self-Perceived Health Assessment Research Unit, School of Medicine, Aix Marseille Université, Marseille, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Morando</LastName>
<ForeName>Claire</ForeName>
<Initials>C</Initials>
<AffiliationInfo><Affiliation>Self-Perceived Health Assessment Research Unit, School of Medicine, Aix Marseille Université, Marseille, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Billette De Villemeur</LastName>
<ForeName>Thierry</ForeName>
<Initials>T</Initials>
<AffiliationInfo><Affiliation>Service de Neuropédiatrie et Polyhandicap Pédiatrique, Hôpital Trousseau, Assistance Publique Hôpitaux de Paris, Paris, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Auquier</LastName>
<ForeName>Pascal</ForeName>
<Initials>P</Initials>
<AffiliationInfo><Affiliation>Self-Perceived Health Assessment Research Unit, School of Medicine, Aix Marseille Université, Marseille, France.</Affiliation>
</AffiliationInfo>
</Author>
</AuthorList>
<Language>eng</Language>
<PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType>
<PublicationType UI="D016448">Multicenter Study</PublicationType>
<PublicationType UI="D013485">Research Support, Non-U.S. Gov't</PublicationType>
</PublicationTypeList>
<ArticleDate DateType="Electronic"><Year>2017</Year>
<Month>04</Month>
<Day>22</Day>
</ArticleDate>
</Article>
<MedlineJournalInfo><Country>England</Country>
<MedlineTA>Dev Med Child Neurol</MedlineTA>
<NlmUniqueID>0006761</NlmUniqueID>
<ISSNLinking>0012-1622</ISSNLinking>
</MedlineJournalInfo>
<CitationSubset>IM</CitationSubset>
<CommentsCorrectionsList><CommentsCorrections RefType="CommentIn"><RefSource>Dev Med Child Neurol. 2017 Jul;59(7):675</RefSource>
<PMID Version="1">28464247</PMID>
</CommentsCorrections>
</CommentsCorrectionsList>
<MeshHeadingList><MeshHeading><DescriptorName UI="D000223" MajorTopicYN="N">Adaptation, Psychological</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D000328" MajorTopicYN="N">Adult</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D000367" MajorTopicYN="N">Age Factors</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D002055" MajorTopicYN="N">Burnout, Professional</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D017028" MajorTopicYN="N">Caregivers</DescriptorName>
<QualifierName UI="Q000523" MajorTopicYN="Y">psychology</QualifierName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D015331" MajorTopicYN="N">Cohort Studies</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D003430" MajorTopicYN="N">Cross-Sectional Studies</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D006233" MajorTopicYN="Y">Disabled Persons</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D005260" MajorTopicYN="N">Female</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D005602" MajorTopicYN="N">France</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D006282" MajorTopicYN="N">Health Personnel</DescriptorName>
<QualifierName UI="Q000523" MajorTopicYN="Y">psychology</QualifierName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D006801" MajorTopicYN="N">Humans</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D008297" MajorTopicYN="N">Male</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D008875" MajorTopicYN="N">Middle Aged</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D015999" MajorTopicYN="N">Multivariate Analysis</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D011788" MajorTopicYN="Y">Quality of Life</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D057566" MajorTopicYN="N">Self Report</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D012959" MajorTopicYN="N">Socioeconomic Factors</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D055815" MajorTopicYN="N">Young Adult</DescriptorName>
</MeshHeading>
</MeshHeadingList>
</MedlineCitation>
<PubmedData><History><PubMedPubDate PubStatus="accepted"><Year>2017</Year>
<Month>02</Month>
<Day>15</Day>
</PubMedPubDate>
<PubMedPubDate PubStatus="pubmed"><Year>2017</Year>
<Month>4</Month>
<Day>23</Day>
<Hour>6</Hour>
<Minute>0</Minute>
</PubMedPubDate>
<PubMedPubDate PubStatus="medline"><Year>2017</Year>
<Month>6</Month>
<Day>20</Day>
<Hour>6</Hour>
<Minute>0</Minute>
</PubMedPubDate>
<PubMedPubDate PubStatus="entrez"><Year>2017</Year>
<Month>4</Month>
<Day>23</Day>
<Hour>6</Hour>
<Minute>0</Minute>
</PubMedPubDate>
</History>
<PublicationStatus>ppublish</PublicationStatus>
<ArticleIdList><ArticleId IdType="pubmed">28432687</ArticleId>
<ArticleId IdType="doi">10.1111/dmcn.13428</ArticleId>
</ArticleIdList>
</PubmedData>
</pubmed>
<affiliations><list><country><li>France</li>
</country>
<region><li>Auvergne-Rhône-Alpes</li>
<li>Provence-Alpes-Côte d'Azur</li>
<li>Rhône-Alpes</li>
<li>Île-de-France</li>
</region>
<settlement><li>Lyon</li>
<li>Marseille</li>
<li>Paris</li>
</settlement>
<orgName><li>Université d'Aix-Marseille</li>
</orgName>
</list>
<tree><country name="France"><noRegion><name sortKey="Rousseau, Marie Christine" sort="Rousseau, Marie Christine" uniqKey="Rousseau M" first="Marie-Christine" last="Rousseau">Marie-Christine Rousseau</name>
</noRegion>
<name sortKey="Auquier, Pascal" sort="Auquier, Pascal" uniqKey="Auquier P" first="Pascal" last="Auquier">Pascal Auquier</name>
<name sortKey="Baumstarck, Karine" sort="Baumstarck, Karine" uniqKey="Baumstarck K" first="Karine" last="Baumstarck">Karine Baumstarck</name>
<name sortKey="Billette De Villemeur, Thierry" sort="Billette De Villemeur, Thierry" uniqKey="Billette De Villemeur T" first="Thierry" last="Billette De Villemeur">Thierry Billette De Villemeur</name>
<name sortKey="Boyer, Laurent" sort="Boyer, Laurent" uniqKey="Boyer L" first="Laurent" last="Boyer">Laurent Boyer</name>
<name sortKey="Brisse, Catherine" sort="Brisse, Catherine" uniqKey="Brisse C" first="Catherine" last="Brisse">Catherine Brisse</name>
<name sortKey="Khaldi Cherif, Cherazad" sort="Khaldi Cherif, Cherazad" uniqKey="Khaldi Cherif C" first="Cherazad" last="Khaldi-Cherif">Cherazad Khaldi-Cherif</name>
<name sortKey="Leroy, Tanguy" sort="Leroy, Tanguy" uniqKey="Leroy T" first="Tanguy" last="Leroy">Tanguy Leroy</name>
<name sortKey="Morando, Claire" sort="Morando, Claire" uniqKey="Morando C" first="Claire" last="Morando">Claire Morando</name>
<name sortKey="Resseguier, Noemie" sort="Resseguier, Noemie" uniqKey="Resseguier N" first="Noémie" last="Resseguier">Noémie Resseguier</name>
<name sortKey="Rousseau, Marie Christine" sort="Rousseau, Marie Christine" uniqKey="Rousseau M" first="Marie-Christine" last="Rousseau">Marie-Christine Rousseau</name>
</country>
</tree>
</affiliations>
</record>

Pour manipuler ce document sous Unix (Dilib)

EXPLOR_STEP=$WICRI_ROOT/Sante/explor/AutomedicationFrancoV1/Data/Main/Exploration

HfdSelect -h $EXPLOR_STEP/biblio.hfd -nk 000C04 | SxmlIndent | more

HfdSelect -h $EXPLOR_AREA/Data/Main/Exploration/biblio.hfd -nk 000C04 | SxmlIndent | more

Pour mettre un lien sur cette page dans le réseau Wicri

{{Explor lien
   |wiki=    Sante
   |area=    AutomedicationFrancoV1
   |flux=    Main
   |étape=   Exploration
   |type=    RBID
   |clé=     pubmed:28432687
   |texte=   Impact of caring for patients with severe and complex disabilities on health care workers' quality of life: determinants and specificities.
}}

Pour générer des pages wiki

HfdIndexSelect -h $EXPLOR_AREA/Data/Main/Exploration/RBID.i   -Sk "pubmed:28432687" \
       | HfdSelect -Kh $EXPLOR_AREA/Data/Main/Exploration/biblio.hfd   \
       | NlmPubMed2Wicri -a AutomedicationFrancoV1

This area was generated with Dilib version V0.6.38.
Data generation: Mon Mar 15 15:24:36 2021. Site generation: Mon Mar 15 15:32:03 2021

	Serveur d'exploration sur l'automédication dans le monde francophone
	Attention, ce site est en cours de développement ! Attention, site généré par des moyens informatiques à partir de corpus bruts. Les informations ne sont donc pas validées.

Serveur d'exploration sur l'automédication dans le monde francophone

Impact of caring for patients with severe and complex disabilities on health care workers' quality of life: determinants and specificities.

Impact of caring for patients with severe and complex disabilities on health care workers' quality of life: determinants and specificities.

Source :

Descripteurs français

English descriptors

Abstract

Links toward previous steps (curation, corpus...)

Le document en format XML

Pour manipuler ce document sous Unix (Dilib)

Pour mettre un lien sur cette page dans le réseau Wicri

Pour générer des pages wiki